HealthURL

 

Postings and Publications

  1. A National Patient Identifier: Should You Care? Bill of Health, Petrie-Flom Center at Harvard Law, July 3, 2019 also THCB

  2. Human Agency has a Standard; June 19, 2019

  3. QHIN Technical Framework PPR Comment; to ONC, June 16, 2019

  4. Patient Privacy Rights Comments to TEFCA Draft 2; to ONC, June 16, 2019

  5. Patient Privacy Rights Comment on Regulatory Capture; to ONC and CMS NPRM, June 16, 2019

  6. Patient Privacy Rights Comments on the Proposed ONC Regulation Pursuant to the Cures Act; Regulations.gov, May 31, 2019

  7. Remembering the Real Stakeholders: Patient Privacy Rights Comments on the Proposed CMS Regulation Pursuant to the Cures Act; Bill of Health, Petrie-Flom Center at Harvard Law, May 32, 2019

  8. Patient-Directed Access for Competition to Bend the Cost Curve; The Health Care Blog, April 18, 2019

  9. How SSI Will Survive Capitalism; Rebooting Web of Trust VIII; April 15, 2019

  10. Draft rules on health information: a ‘Reformation’ in the making?; STAT, April 12, 2019

  11. ONC’s Proposed Rule is a Breakthrough in Patient Empowerment; Bill of Health, Petrie-Flom Center at Harvard Law, February 19, 2019 - Also, THCB, Feb 22, 2019

  12. HIPAA RFI Comments: Patient Privacy Rights; Bill of Health, Petrie-Flom Center at Harvard Law, February 7, 2019 - Also, THCB, Feb 7, 2019

  13. The Futility of Patient Matching; The Health Care Blog, October 25, 2018

  14. Standards for Personal Agency - The Homeless Health Record Project; (13:30) U.S. Department of Health and Human Services (HHS) “Data Min(d)ing: Privacy and Our Digital Identities,” Symposium, October 22, 2018

  15. Privacy Regulation in the Age of Machine Learning; Bill of Health, Petrie-Flom Center at Harvard Law, October 17, 2018

  16. Standards for Agency and Decentralized Information Governance - Early Experience; Rebooting Web of Trust 7; September 2018

  17. An inside look at the potential of blockchain in healthcare; TechTarget, September 2018

  18. Adrian Gropper and the HIE of One – Harlow on Healthcare; Podcast 28:35, August 6, 2018

  19. Information Blocking–The AHA Comments & PPR Responds; and linked Gdoc, The Health Care Blog, July 20, 2018

  20. Reimagining Health Data Exchange: An Application Programming Interface–Enabled Roadmap for India; J Med Internet Res 2018;20(7):e10725 DOI: 10.2196/10725 - See also Ref 89: Government of India, NITI Aayog. National Health Stack: Strategy and Approach. 2018 Jul. (p30 mentions “health information exchange of one”)

  21. MyData Podacast - Adrian Gropper; MyData interview by Molly Scwartz, Video (49:25) July 4, 2018

  22. PPR Comments on Information Blocking; Formal CMS Comment also in The Health Care Blog, June 25, 2018

  23. The Information Technology Challenge to Medicine as a Profession; Talk at the 40th reunion for Harvard Medical School; June 1, 2018

  24. Empowering Patients through Decentralized Information Governance; The Health Care Blog, March 12, 2018

  25. Blockchain-Secured, Patient-Controlled Health Records; By Deborah Borfitz, Clinical Informatics News, May 8, 2018

  26. The One Way the Trump Administration Can Drive Competition Without Regulation; The Health Care Blog, March 12, 2018

  27. A National Health Encounter Surveillance System; The Health Care Blog, February 24, 2018 - also in POLITICO Morning eHealth, February 26, 2018

  28. Death by a Thousand Clicks - How can we make EHRs better?; Boston Society of Neurology & Psychiatry, February 22, 2018 - Video 2:02:48 - Note, my presentation starts at the 29 minute mark.

  29. Medicine Is a Profession That is Rapidly Losing Control of Its Tools; The Health Care Blog, February 5, 2018 - also in POLITICO Morning eHealth, February 6, 2018

  30. A Patient Experience-Based View of the TEFCA; The Health Care Blog, January 18, 2018 - also in POLITICO Morning eHealth, January 19, 2018

  31. Examining Open Source Blockchain Developments for Patient Records ; Blockchain in Healthcare Conference; November 16, 2017

  32. Blockchain-linked Patient-Controlled Independent Health Record; Poster, U Michigan ELSI-LHS Symposium; November 15, 2017

  33. HIE of One Highlights; Video (2:25), October 14, 2017

  34. Identity Hubs Capabilities Perspective; Rebooting the Web of Trust V, October 13, 2017

  35. HIE of One Loop: A Patient-Controlled Independent Health Record; Rebooting the Web of Trust V, September 25, 2017

  36. A New Pothole on the Health Interoperability Superhighway; The Health Care Blog, August 15, 2017

  37. ONC Interoperability Meeting Raises More Questions Than Answers; The Health Care Blog, July 25, 2017 - also in POLITICO Morning eHealth, July 26, 2017

  38. Regulatory Capture Tests the New Administration; The Health Care Blog, July 17, 2017

  39. Open Season on Health Privacy in Washington DC; The Health Care Blog, May 24, 2017

  40. Is Health Privacy a Human Right?; The Health Care Blog, May 19, 2017

  41. HIE of One Patient-Centered Health Record Prescription using Blockchains (4:43); YouTube, April 30, 2017

  42. Application of Blockchains to Patient-Centered Health Records; McCombs School of Business Healthcare Initiative April 7, 2017

  43. Privacy Engineering Medical Records; IBM InterConnect2017 Innovation Talk, March 20, 2017

  44. Patient-Owned Medical Records: Can Blockchain Change the Way We Manage our Medical Data? Video and Slides; HTILAB Seminar;  Columbia Mailman School of Public Health, March 9, 2017

  45. Free Independent Health Records; Digital Health @ Harvard, January 26. 2017 Video and Questions Index - Slides

  46. Making the Physician-Patient Relationship Great Again; The Health Care Blog, December 16, 2016

  47. Who controls your medical data? Collaboration with Bruce Schneier, TEDMED November 30, 2016

  48. One Regulation Could Eliminate a Dozen Others; The Health Care Blog, November 29, 2016

  49. Re-Decentralization of Medicine: The HIE of One; The Health Care Blog, October 17, 2016

  50. Blockchains Power the Physician-Patient Relationship; Society for Participatory Medicine, October 10, 2016

  51. Independent Decision Support at the Point of Care with HIE of One; Business Case; Slides; Move Health Data Forward Challenge, September 8, 2016

  52. Powering the Physician Patient Relationship with ‘HIE of One’ Blockchain Health IT; Rebooting the Web of Trust II: ID2020 Design Workshop, September 7, 2016

  53. Powering the Physician Patient Relationship with ‘HIE of One’ Blockchain Health IT; ONC announces Blockchain challenge winners, August 29, 2016

  54. VA and CMS are Leading From Behind; The Health Care Blog, June 17, 2016

  55. Independent Decision Support at the Point-of-Care for Both Patients and Physicians; The Health Care Blog, May 13, 2016

  56. Model Privacy Notice Comments; reddit; April 15, 2016

  57. Privacy vs. Capitalism; Slides and Audio (32:07) advance slides as you listen; MIT, March 31, 2016

  58. Precision Medicine’s First Test is Blue Button on FHIR; The Health Care Blog, March 17, 2016

  59. Congress Needs to do Something About Data Blocking Now; The Health Care Blog, February 28, 2016

  60. Apple and the 3 Kinds of Privacy Policies; The Health Care Blog, February 22, 2016

  61. mdNOSH to pNOSH on FHIR; HEART Presentation, February 8, 2016

  62. Experts argue the benefits, pitfalls of a unique patient identifier; STAT, January 28, 2016

  63. PPR API Task Force Testimony; January 28, 2016

  64. The Patient-Centered Health Record; The Health Care Blog, January 23, 2016

  65. Patient-Centered Health Records - Nosh and HIE of One; (55:45) Google Hangout; January 20, 2016

  66. PPR Comments on the NPRM amendments to the Common Rule; January 6, 2016

  67. Universal Patient Identifiers for the 21st Century; The Health Care Blog; September 1, 2015

  68. Patient-Driven Interoperability; The Health Care Blog; July 20, 2015

  69. Meaningful Use Stage 3 Comment; Regulations.gov; May 29, 2015

  70. (Secret) Apps Invade Healthcare; video 12:33, (click Gropper...) - slides - Mass Medical Society Symposium, May 7, 2015

  71. Last Chance for Meaningful Use; The Health Care Blog, April 16, 2015

  72. The HIMSS Version of Voter ID Laws; The Health Care Blog, April 10, 2015

  73. What the IoT can learn from the health care industry; O’Reilly Radar; March 19, 2015

  74. Post-MI Implant and Rehab Use Case; OpenID HEART Workgroup; March 9, 2015

  75. Privacy Engineering Provenance; Data Provenance Task Force Testimony; January 16, 2015

  76. ONC Signals a Shift From Documents to Interfaces; The Health Care Blog, December 7, 2014

  77. An Open Letter on the NATE Trust Community; The Health Care Blog, November 14, 2014

  78. Ebola Offers a Teachable Moment For Health Information Technology; The Health Care Blog, October 10, 2014

  79. What You Need to Know About Patient Matching and What You Can Do About It; The Health Care Blog, February 21, 2014

  80. Who “owns” healthcare data? Medicine X Stanford Hangout, February 4, 2014

  81. IDESG Is a Glimpse of Our Digital Future; The Health Care Blog, January 26, 2014

  82. Let’s Decriminalize Our Health Records; The Health Care Blog, January 10, 2014

  83. It’s Doctors versus Hospitals Over Meaningful Use; The Health Care Blog, December 12, 2013

  84. Information Asymmetry – The Politics of Health IT Policy; The Health Care Blog, November 9, 2013

  85. Privacy guru knocks patient ID as ploy; Healthcare IT News, October 23, 2013

  86. State Surveillance Endangers the Affordable Care Act: A Case Study; The Health Care Blog, October 18, 2013

  87. A Troubling Strategy at Health IT Week; The Health Care Blog, September 19, 2013

  88. Competing for Patient Trust and Data Privacy in the Age of Big Data; IHT2 Webinar; September 10, 2013

  89. The Federal Health Data Services Hub Hubbub; The Health Care Blog, August 15, 2013

  90. Radiation Exposure Monitoring for Patient Safety; Patient Safety and Quality Healthcare, July / August 2013

  91. Enabling the Health Care Locavore; The Health Care Blog, August 11, 2013

  92. The Affordable Care Act Will Fail Without Patient Engagement, The Health Care Blog, July 22, 2013

  93. Datapalooza Report on Data Economics and a Call for Reciprocity; The Health Care Blog, June 5, 2013

  94. The Independent Purchase Decision Support Test; The Health Care Blog, May 28, 2013

  95. Debate: Two views on the path to data access; Video, Health:Refactored, May 14, 2013

  96. Open Data Advocate Joins Patient Privacy Rights Group as Chief Technology Officer; The Health Care Blog, May 7 2013

  97. ONC Holds A Key To the Structural Deficit; The Health Care Blog, April 7, 2013

  98. The #CommonWell Open Discussion Forum; The Health Care Blog, March 18, 2013

  99. CommonWell Is a Shame and a Missed Opportunity; The Health Care Blog, March 6, 2013

  100. Patient Privacy Rights testimony on patient ID and Direct messaging; HHS Hearing January 29, 2013

  101. John Halamka demos image sharing via Direct; 2:55 MP3, HHS Hearing January 29, 2013 Your health data could be worth over $3,000 / year; Healthcare Savvy, October 21, 2012

  102. The Coming Health Care Singularity; The Health Care Blog, September 17, 2012

  103. What Do Aggregators Know About Me and Why It’s Important; e-patients.net, May 20, 2012

  104. A Fork in the Road to Meaningful Use; The Health Care Blog, May 4, 2012

  105. Health Information Exchanges and the Problem of Consent; KevinMD, March 26, 2012

  106. Engaging “The” Patient; The Health Care Blog, March 13, 2012

  107. An e-Patient Perspective on Stage 2 of Meaningful Use;  e-patients.net, February 27, 2012

  108. Looking for Interoperability in all the Wrong Places; The Health Care Blog, November 7, 2011 or here

  109. Open-Source Health Care Software; Virtual Mentor - American Medical Association Journal of Ethics, September 2011, Volume 13, Number 9: 632-636.

  110. The Case for Connected Web Portals; HealthURL, September 10, 2011

  111. How to post the specific costs and services? Healthcare Savvy, August 21, 2011

  112. Are Patients and Interoperability Finally Coming to the Fore of Health IT? The Health Care Blog, March 17, 2011

  113. Putting the Patient First, Literally; The Health Care Blog, January 18, 2011

  114. Wanted: A PCAST Patient Portal; The Health Care Blog, January 4, 2011

  115. PCAST – Is ONC Embracing Health Information Exchange from the Patient Perspective? Care and Cost, December 15, 2010

  116. The Dog’s OAuth; The Health Care Blog, January 18, 2010

  117. Health Internet - The New Consumer-Friendly NHIN; The Health Care Blog, October 9, 2009

  118. Meaningful Health Data Mining - How will we regulate consumer-driven research and advice? The Health Care Blog, May 1, 2009

  119. A Transparent Health Record; The Health Care Blog, January 28, 2009

  120. Private Health Records and the Health URL - A patient-centered care team approach to health information management; Patient Safety and Quality Healthcare, July / August 2007

  121. Web-Connected Patients and Doctors: The Case for Personal Control of Private Health Information; Patient Safety and Quality Healthcare, July / August 2006

  122. RealTime Worklist(TM) Physician-Centric Systems Integration for an On-Demand World; mTHINK, June 30, 2003

  123. The Internet as a Disruptive Technology; Imaging Economics, December 2001

  124. The Internet Vision of PACS; C. Kelty Thesis Appendix, May 26, 1999

  125. Enterprise-scale image distribution with a Web PACS; Journal of Digital Imaging, August 1998