HealthURL

 

Postings and Publications

  1. Standards for Agency and Decentralized Information Governance - Early Experience; Rebooting Web of Trust 7; September 2018

  2. An inside look at the potential of blockchain in healthcare; TechTarget, September 2018

  3. Adrian Gropper and the HIE of One – Harlow on Healthcare; Podcast 28:35, August 6, 2018

  4. Information Blocking–The AHA Comments & PPR Responds; and linked Gdoc, The Health Care Blog, July 20, 2018

  5. Reimagining Health Data Exchange: An Application Programming Interface–Enabled Roadmap for India; J Med Internet Res 2018;20(7):e10725 DOI: 10.2196/10725 - See also Ref 89: Government of India, NITI Aayog. National Health Stack: Strategy and Approach. 2018 Jul. (p30 mentions “health information exchange of one”)

  6. MyData Podacast - Adrian Gropper; MyData interview by Molly Scwartz, Video (49:25) July 4, 2018

  7. PPR Comments on Information Blocking; Formal CMS Comment also in The Health Care Blog, June 25, 2018

  8. The Information Technology Challenge to Medicine as a Profession; Talk at the 40th reunion for Harvard Medical School; June 1, 2018

  9. Empowering Patients through Decentralized Information Governance; The Health Care Blog, March 12, 2018

  10. Blockchain-Secured, Patient-Controlled Health Records; By Deborah Borfitz, Clinical Informatics News, May 8, 2018

  11. The One Way the Trump Administration Can Drive Competition Without Regulation; The Health Care Blog, March 12, 2018

  12. A National Health Encounter Surveillance System; The Health Care Blog, February 24, 2018 - also in POLITICO Morning eHealth, February 26, 2018

  13. Death by a Thousand Clicks - How can we make EHRs better?; Boston Society of Neurology & Psychiatry, February 22, 2018 - Video 2:02:48 - Note, my presentation starts at the 29 minute mark.

  14. Medicine Is a Profession That is Rapidly Losing Control of Its Tools; The Health Care Blog, February 5, 2018 - also in POLITICO Morning eHealth, February 6, 2018

  15. A Patient Experience-Based View of the TEFCA; The Health Care Blog, January 18, 2018 - also in POLITICO Morning eHealth, January 19, 2018

  16. Examining Open Source Blockchain Developments for Patient Records ; Blockchain in Healthcare Conference; November 16, 2017

  17. Blockchain-linked Patient-Controlled Independent Health Record; Poster, U Michigan ELSI-LHS Symposium; November 15, 2017

  18. HIE of One Highlights; Video (2:25), October 14, 2017

  19. Identity Hubs Capabilities Perspective; Rebooting the Web of Trust V, October 13, 2017

  20. HIE of One Loop: A Patient-Controlled Independent Health Record; Rebooting the Web of Trust V, September 25, 2017

  21. A New Pothole on the Health Interoperability Superhighway; The Health Care Blog, August 15, 2017

  22. ONC Interoperability Meeting Raises More Questions Than Answers; The Health Care Blog, July 25, 2017 - also in POLITICO Morning eHealth, July 26, 2017

  23. Regulatory Capture Tests the New Administration; The Health Care Blog, July 17, 2017

  24. Open Season on Health Privacy in Washington DC; The Health Care Blog, May 24, 2017

  25. Is Health Privacy a Human Right?; The Health Care Blog, May 19, 2017

  26. HIE of One Patient-Centered Health Record Prescription using Blockchains (4:43); YouTube, April 30, 2017

  27. Application of Blockchains to Patient-Centered Health Records; McCombs School of Business Healthcare Initiative April 7, 2017

  28. Privacy Engineering Medical Records; IBM InterConnect2017 Innovation Talk, March 20, 2017

  29. Patient-Owned Medical Records: Can Blockchain Change the Way We Manage our Medical Data? Video and Slides; HTILAB Seminar;  Columbia Mailman School of Public Health, March 9, 2017

  30. Free Independent Health Records; Digital Health @ Harvard, January 26. 2017 Video and Questions Index - Slides

  31. Making the Physician-Patient Relationship Great Again; The Health Care Blog, December 16, 2016

  32. Who controls your medical data? Collaboration with Bruce Schneier, TEDMED November 30, 2016

  33. One Regulation Could Eliminate a Dozen Others; The Health Care Blog, November 29, 2016

  34. Re-Decentralization of Medicine: The HIE of One; The Health Care Blog, October 17, 2016

  35. Blockchains Power the Physician-Patient Relationship; Society for Participatory Medicine, October 10, 2016

  36. Independent Decision Support at the Point of Care with HIE of One; Business Case; Slides; Move Health Data Forward Challenge, September 8, 2016

  37. Powering the Physician Patient Relationship with ‘HIE of One’ Blockchain Health IT; Rebooting the Web of Trust II: ID2020 Design Workshop, September 7, 2016

  38. Powering the Physician Patient Relationship with ‘HIE of One’ Blockchain Health IT; ONC announces Blockchain challenge winners, August 29, 2016

  39. VA and CMS are Leading From Behind; The Health Care Blog, June 17, 2016

  40. Independent Decision Support at the Point-of-Care for Both Patients and Physicians; The Health Care Blog, May 13, 2016

  41. Model Privacy Notice Comments; reddit; April 15, 2016

  42. Privacy vs. Capitalism; Slides and Audio (32:07) advance slides as you listen; MIT, March 31, 2016

  43. Precision Medicine’s First Test is Blue Button on FHIR; The Health Care Blog, March 17, 2016

  44. Congress Needs to do Something About Data Blocking Now; The Health Care Blog, February 28, 2016

  45. Apple and the 3 Kinds of Privacy Policies; The Health Care Blog, February 22, 2016

  46. mdNOSH to pNOSH on FHIR; HEART Presentation, February 8, 2016

  47. Experts argue the benefits, pitfalls of a unique patient identifier; STAT, January 28, 2016

  48. PPR API Task Force Testimony; January 28, 2016

  49. The Patient-Centered Health Record; The Health Care Blog, January 23, 2016

  50. Patient-Centered Health Records - Nosh and HIE of One; (55:45) Google Hangout; January 20, 2016

  51. PPR Comments on the NPRM amendments to the Common Rule; January 6, 2016

  52. Universal Patient Identifiers for the 21st Century; The Health Care Blog; September 1, 2015

  53. Patient-Driven Interoperability; The Health Care Blog; July 20, 2015

  54. Meaningful Use Stage 3 Comment; Regulations.gov; May 29, 2015

  55. (Secret) Apps Invade Healthcare; video 12:33, (click Gropper...) - slides - Mass Medical Society Symposium, May 7, 2015

  56. Last Chance for Meaningful Use; The Health Care Blog, April 16, 2015

  57. The HIMSS Version of Voter ID Laws; The Health Care Blog, April 10, 2015

  58. What the IoT can learn from the health care industry; O’Reilly Radar; March 19, 2015

  59. Post-MI Implant and Rehab Use Case; OpenID HEART Workgroup; March 9, 2015

  60. Privacy Engineering Provenance; Data Provenance Task Force Testimony; January 16, 2015

  61. ONC Signals a Shift From Documents to Interfaces; The Health Care Blog, December 7, 2014

  62. An Open Letter on the NATE Trust Community; The Health Care Blog, November 14, 2014

  63. Ebola Offers a Teachable Moment For Health Information Technology; The Health Care Blog, October 10, 2014

  64. What You Need to Know About Patient Matching and What You Can Do About It; The Health Care Blog, February 21, 2014

  65. Who “owns” healthcare data? Medicine X Stanford Hangout, February 4, 2014

  66. IDESG Is a Glimpse of Our Digital Future; The Health Care Blog, January 26, 2014

  67. Let’s Decriminalize Our Health Records; The Health Care Blog, January 10, 2014

  68. It’s Doctors versus Hospitals Over Meaningful Use; The Health Care Blog, December 12, 2013

  69. Information Asymmetry – The Politics of Health IT Policy; The Health Care Blog, November 9, 2013

  70. Privacy guru knocks patient ID as ploy; Healthcare IT News, October 23, 2013

  71. State Surveillance Endangers the Affordable Care Act: A Case Study; The Health Care Blog, October 18, 2013

  72. A Troubling Strategy at Health IT Week; The Health Care Blog, September 19, 2013

  73. Competing for Patient Trust and Data Privacy in the Age of Big Data; IHT2 Webinar; September 10, 2013

  74. The Federal Health Data Services Hub Hubbub; The Health Care Blog, August 15, 2013

  75. Radiation Exposure Monitoring for Patient Safety; Patient Safety and Quality Healthcare, July / August 2013

  76. Enabling the Health Care Locavore; The Health Care Blog, August 11, 2013

  77. The Affordable Care Act Will Fail Without Patient Engagement, The Health Care Blog, July 22, 2013

  78. Datapalooza Report on Data Economics and a Call for Reciprocity; The Health Care Blog, June 5, 2013

  79. The Independent Purchase Decision Support Test; The Health Care Blog, May 28, 2013

  80. Debate: Two views on the path to data access; Video, Health:Refactored, May 14, 2013

  81. Open Data Advocate Joins Patient Privacy Rights Group as Chief Technology Officer; The Health Care Blog, May 7 2013

  82. ONC Holds A Key To the Structural Deficit; The Health Care Blog, April 7, 2013

  83. The #CommonWell Open Discussion Forum; The Health Care Blog, March 18, 2013

  84. CommonWell Is a Shame and a Missed Opportunity; The Health Care Blog, March 6, 2013

  85. Patient Privacy Rights testimony on patient ID and Direct messaging; HHS Hearing January 29, 2013

  86. John Halamka demos image sharing via Direct; 2:55 MP3, HHS Hearing January 29, 2013


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