HealthURL

 

Postings and Publications

  1. ONC’s Proposed Rule is a Breakthrough in Patient Empowerment; Bill of Health, Petrie-Flom Center at Harvard Law, February 19, 2019 - Also, THCB, Feb 22, 2019

  2. HIPAA RFI Comments: Patient Privacy Rights; Bill of Health, Petrie-Flom Center at Harvard Law, February 7, 2019 - Also, THCB, Feb 7, 2019

  3. The Futility of Patient Matching; The Health Care Blog, October 25, 2018

  4. Standards for Personal Agency - The Homeless Health Record Project; (13:30) U.S. Department of Health and Human Services (HHS) “Data Min(d)ing: Privacy and Our Digital Identities,” Symposium, October 22, 2018

  5. Privacy Regulation in the Age of Machine Learning; Bill of Health, Petrie-Flom Center at Harvard Law, October 17, 2018

  6. Standards for Agency and Decentralized Information Governance - Early Experience; Rebooting Web of Trust 7; September 2018

  7. An inside look at the potential of blockchain in healthcare; TechTarget, September 2018

  8. Adrian Gropper and the HIE of One – Harlow on Healthcare; Podcast 28:35, August 6, 2018

  9. Information Blocking–The AHA Comments & PPR Responds; and linked Gdoc, The Health Care Blog, July 20, 2018

  10. Reimagining Health Data Exchange: An Application Programming Interface–Enabled Roadmap for India; J Med Internet Res 2018;20(7):e10725 DOI: 10.2196/10725 - See also Ref 89: Government of India, NITI Aayog. National Health Stack: Strategy and Approach. 2018 Jul. (p30 mentions “health information exchange of one”)

  11. MyData Podacast - Adrian Gropper; MyData interview by Molly Scwartz, Video (49:25) July 4, 2018

  12. PPR Comments on Information Blocking; Formal CMS Comment also in The Health Care Blog, June 25, 2018

  13. The Information Technology Challenge to Medicine as a Profession; Talk at the 40th reunion for Harvard Medical School; June 1, 2018

  14. Empowering Patients through Decentralized Information Governance; The Health Care Blog, March 12, 2018

  15. Blockchain-Secured, Patient-Controlled Health Records; By Deborah Borfitz, Clinical Informatics News, May 8, 2018

  16. The One Way the Trump Administration Can Drive Competition Without Regulation; The Health Care Blog, March 12, 2018

  17. A National Health Encounter Surveillance System; The Health Care Blog, February 24, 2018 - also in POLITICO Morning eHealth, February 26, 2018

  18. Death by a Thousand Clicks - How can we make EHRs better?; Boston Society of Neurology & Psychiatry, February 22, 2018 - Video 2:02:48 - Note, my presentation starts at the 29 minute mark.

  19. Medicine Is a Profession That is Rapidly Losing Control of Its Tools; The Health Care Blog, February 5, 2018 - also in POLITICO Morning eHealth, February 6, 2018

  20. A Patient Experience-Based View of the TEFCA; The Health Care Blog, January 18, 2018 - also in POLITICO Morning eHealth, January 19, 2018

  21. Examining Open Source Blockchain Developments for Patient Records ; Blockchain in Healthcare Conference; November 16, 2017

  22. Blockchain-linked Patient-Controlled Independent Health Record; Poster, U Michigan ELSI-LHS Symposium; November 15, 2017

  23. HIE of One Highlights; Video (2:25), October 14, 2017

  24. Identity Hubs Capabilities Perspective; Rebooting the Web of Trust V, October 13, 2017

  25. HIE of One Loop: A Patient-Controlled Independent Health Record; Rebooting the Web of Trust V, September 25, 2017

  26. A New Pothole on the Health Interoperability Superhighway; The Health Care Blog, August 15, 2017

  27. ONC Interoperability Meeting Raises More Questions Than Answers; The Health Care Blog, July 25, 2017 - also in POLITICO Morning eHealth, July 26, 2017

  28. Regulatory Capture Tests the New Administration; The Health Care Blog, July 17, 2017

  29. Open Season on Health Privacy in Washington DC; The Health Care Blog, May 24, 2017

  30. Is Health Privacy a Human Right?; The Health Care Blog, May 19, 2017

  31. HIE of One Patient-Centered Health Record Prescription using Blockchains (4:43); YouTube, April 30, 2017

  32. Application of Blockchains to Patient-Centered Health Records; McCombs School of Business Healthcare Initiative April 7, 2017

  33. Privacy Engineering Medical Records; IBM InterConnect2017 Innovation Talk, March 20, 2017

  34. Patient-Owned Medical Records: Can Blockchain Change the Way We Manage our Medical Data? Video and Slides; HTILAB Seminar;  Columbia Mailman School of Public Health, March 9, 2017

  35. Free Independent Health Records; Digital Health @ Harvard, January 26. 2017 Video and Questions Index - Slides

  36. Making the Physician-Patient Relationship Great Again; The Health Care Blog, December 16, 2016

  37. Who controls your medical data? Collaboration with Bruce Schneier, TEDMED November 30, 2016

  38. One Regulation Could Eliminate a Dozen Others; The Health Care Blog, November 29, 2016

  39. Re-Decentralization of Medicine: The HIE of One; The Health Care Blog, October 17, 2016

  40. Blockchains Power the Physician-Patient Relationship; Society for Participatory Medicine, October 10, 2016

  41. Independent Decision Support at the Point of Care with HIE of One; Business Case; Slides; Move Health Data Forward Challenge, September 8, 2016

  42. Powering the Physician Patient Relationship with ‘HIE of One’ Blockchain Health IT; Rebooting the Web of Trust II: ID2020 Design Workshop, September 7, 2016

  43. Powering the Physician Patient Relationship with ‘HIE of One’ Blockchain Health IT; ONC announces Blockchain challenge winners, August 29, 2016

  44. VA and CMS are Leading From Behind; The Health Care Blog, June 17, 2016

  45. Independent Decision Support at the Point-of-Care for Both Patients and Physicians; The Health Care Blog, May 13, 2016

  46. Model Privacy Notice Comments; reddit; April 15, 2016

  47. Privacy vs. Capitalism; Slides and Audio (32:07) advance slides as you listen; MIT, March 31, 2016

  48. Precision Medicine’s First Test is Blue Button on FHIR; The Health Care Blog, March 17, 2016

  49. Congress Needs to do Something About Data Blocking Now; The Health Care Blog, February 28, 2016

  50. Apple and the 3 Kinds of Privacy Policies; The Health Care Blog, February 22, 2016

  51. mdNOSH to pNOSH on FHIR; HEART Presentation, February 8, 2016

  52. Experts argue the benefits, pitfalls of a unique patient identifier; STAT, January 28, 2016

  53. PPR API Task Force Testimony; January 28, 2016

  54. The Patient-Centered Health Record; The Health Care Blog, January 23, 2016

  55. Patient-Centered Health Records - Nosh and HIE of One; (55:45) Google Hangout; January 20, 2016

  56. PPR Comments on the NPRM amendments to the Common Rule; January 6, 2016

  57. Universal Patient Identifiers for the 21st Century; The Health Care Blog; September 1, 2015

  58. Patient-Driven Interoperability; The Health Care Blog; July 20, 2015

  59. Meaningful Use Stage 3 Comment; Regulations.gov; May 29, 2015

  60. (Secret) Apps Invade Healthcare; video 12:33, (click Gropper...) - slides - Mass Medical Society Symposium, May 7, 2015

  61. Last Chance for Meaningful Use; The Health Care Blog, April 16, 2015

  62. The HIMSS Version of Voter ID Laws; The Health Care Blog, April 10, 2015

  63. What the IoT can learn from the health care industry; O’Reilly Radar; March 19, 2015

  64. Post-MI Implant and Rehab Use Case; OpenID HEART Workgroup; March 9, 2015

  65. Privacy Engineering Provenance; Data Provenance Task Force Testimony; January 16, 2015

  66. ONC Signals a Shift From Documents to Interfaces; The Health Care Blog, December 7, 2014

  67. An Open Letter on the NATE Trust Community; The Health Care Blog, November 14, 2014

  68. Ebola Offers a Teachable Moment For Health Information Technology; The Health Care Blog, October 10, 2014

  69. What You Need to Know About Patient Matching and What You Can Do About It; The Health Care Blog, February 21, 2014

  70. Who “owns” healthcare data? Medicine X Stanford Hangout, February 4, 2014

  71. IDESG Is a Glimpse of Our Digital Future; The Health Care Blog, January 26, 2014

  72. Let’s Decriminalize Our Health Records; The Health Care Blog, January 10, 2014

  73. It’s Doctors versus Hospitals Over Meaningful Use; The Health Care Blog, December 12, 2013

  74. Information Asymmetry – The Politics of Health IT Policy; The Health Care Blog, November 9, 2013

  75. Privacy guru knocks patient ID as ploy; Healthcare IT News, October 23, 2013

  76. State Surveillance Endangers the Affordable Care Act: A Case Study; The Health Care Blog, October 18, 2013

  77. A Troubling Strategy at Health IT Week; The Health Care Blog, September 19, 2013

  78. Competing for Patient Trust and Data Privacy in the Age of Big Data; IHT2 Webinar; September 10, 2013

  79. The Federal Health Data Services Hub Hubbub; The Health Care Blog, August 15, 2013

  80. Radiation Exposure Monitoring for Patient Safety; Patient Safety and Quality Healthcare, July / August 2013

  81. Enabling the Health Care Locavore; The Health Care Blog, August 11, 2013

  82. The Affordable Care Act Will Fail Without Patient Engagement, The Health Care Blog, July 22, 2013

  83. Datapalooza Report on Data Economics and a Call for Reciprocity; The Health Care Blog, June 5, 2013

  84. The Independent Purchase Decision Support Test; The Health Care Blog, May 28, 2013

  85. Debate: Two views on the path to data access; Video, Health:Refactored, May 14, 2013

  86. Open Data Advocate Joins Patient Privacy Rights Group as Chief Technology Officer; The Health Care Blog, May 7 2013

  87. ONC Holds A Key To the Structural Deficit; The Health Care Blog, April 7, 2013

  88. The #CommonWell Open Discussion Forum; The Health Care Blog, March 18, 2013

  89. CommonWell Is a Shame and a Missed Opportunity; The Health Care Blog, March 6, 2013

  90. Patient Privacy Rights testimony on patient ID and Direct messaging; HHS Hearing January 29, 2013

  91. John Halamka demos image sharing via Direct; 2:55 MP3, HHS Hearing January 29, 2013


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