A national unique patient identifier faces an uncertain, bumpy road HealthData Management, November 10, 2021

IETF GNAP interaction with W3C API work; (21 minutes) Internet Engineering Task Force - IETF 111 Meeting, July 26, 2021

New Experts Join the EPIC Advisory Board; epic.org, July 26, 2021

10 Design Considerations for Vaccine Credentials; Bill of Health, Petrie-Flom Center at Harvard Law, May 5, 2021

Privacy Entrepreneur Adrian Gropper; by Daniel Dern; IEEE Spectrum; April 2021

Trust in Health Care; TWiT - This Week in Tech with Doc Searls and Shawn Powers; Video 59:38; November 18, 2020

SSI 4 Pandemics; MyData; October 7, 2020

UMA Health Info Interop + User Control Webinar; Kantara Webinar, July 21, 2020

How Traditional Health Records Bolster Structural Racism; Bill of Health, Petrie-Flom Center at Harvard Law, June 23, 2020

ONC Patient Identity and Matching Working Session; HHS Video Testimony; 8 minutes; June 1, 2020

Community Organizations Can Reduce the Privacy Impacts of Surveillance During COVID-19; Bill of Health, Petrie-Flom Center at Harvard Law, April 29, 2020

A Patient’s View of the Cures Regulations; The Health Care Blog, March 11, 2020

Strategic Interests and the ONC Annual Meeting; The Health Care Blog, January 29, 2020

Patient-Directed Uses vs. The Platform; The Health Care Blog, December 18, 2019

What Google Isn’t Saying About Your Health Records; Bill of Health, Petrie-Flom Center at Harvard Law, November 14, 2019

A Protocol for Decentralized Authorization; W3C Credentials Community Group, November 12, 2019

Trustee Universal Health Records - White Paper; November 2019

ACCESS Act Points the Way to a Post-HIPAA World; Bill of Health, Petrie-Flom Center at Harvard Law, October 24, 2019

The case for self-sovereign personal AI; Carnegie Mellon University HCII Seminar Series, September 13, 2019

Barbarians at the Gate; The Health Care Blog, September 5, 2019

Patient Privacy Rights Information Governance Label; Posted to SSRN August 28, 2019

US Patent for: MANAGED OPEN SOURCE MEDICAL DEVICES 10,367,803, July 30, 2019

A National Patient Identifier: Should You Care? Bill of Health, Petrie-Flom Center at Harvard Law, July 3, 2019 also THCB

Human Agency has a Standard; June 19, 2019

QHIN Technical Framework PPR Comment; to ONC, June 16, 2019

Patient Privacy Rights Comments to TEFCA Draft 2; to ONC, June 16, 2019

Patient Privacy Rights Comment on Regulatory Capture; to ONC and CMS NPRM, June 16, 2019

Patient Privacy Rights Comments on the Proposed ONC Regulation Pursuant to the Cures Act; Regulations.gov, May 31, 2019

Remembering the Real Stakeholders: Patient Privacy Rights Comments on the Proposed CMS Regulation Pursuant to the Cures Act; Bill of Health, Petrie-Flom Center at Harvard Law, May 32, 2019

Patient-Directed Access for Competition to Bend the Cost Curve; The Health Care Blog, April 18, 2019

How SSI Will Survive Capitalism; Rebooting Web of Trust VIII; April 15, 2019

Draft rules on health information: a ‘Reformation’ in the making?; STAT, April 12, 2019

ONC’s Proposed Rule is a Breakthrough in Patient Empowerment; Bill of Health, Petrie-Flom Center at Harvard Law, February 19, 2019 - Also, THCB, Feb 22, 2019

HIPAA RFI Comments: Patient Privacy Rights; Bill of Health, Petrie-Flom Center at Harvard Law, February 7, 2019 - Also, THCB, Feb 7, 2019

The Futility of Patient Matching; The Health Care Blog, October 25, 2018

Standards for Personal Agency - The Homeless Health Record Project; (13:30) U.S. Department of Health and Human Services (HHS) “Data Min(d)ing: Privacy and Our Digital Identities,” Symposium, October 22, 2018

Privacy Regulation in the Age of Machine Learning; Bill of Health, Petrie-Flom Center at Harvard Law, October 17, 2018

Standards for Agency and Decentralized Information Governance - Early Experience; Rebooting Web of Trust 7; September 2018

An inside look at the potential of blockchain in healthcare; TechTarget, September 2018

Adrian Gropper and the HIE of One – Harlow on Healthcare; Podcast 28:35, August 6, 2018

Information Blocking–The AHA Comments & PPR Responds; and linked Gdoc, The Health Care Blog, July 20, 2018

Reimagining Health Data Exchange: An Application Programming Interface–Enabled Roadmap for India; J Med Internet Res 2018;20(7):e10725 DOI: 10.2196/10725 - See also Ref 89: Government of India, NITI Aayog. National Health Stack: Strategy and Approach. 2018 Jul. (p30 mentions “health information exchange of one”)

MyData Podacast - Adrian Gropper; MyData interview by Molly Scwartz, Video (49:25) July 4, 2018

PPR Comments on Information Blocking; Formal CMS Comment also in The Health Care Blog, June 25, 2018

The Information Technology Challenge to Medicine as a Profession; Talk at the 40th reunion for Harvard Medical School; June 1, 2018

Empowering Patients through Decentralized Information Governance; The Health Care Blog, March 12, 2018

Blockchain-Secured, Patient-Controlled Health Records; By Deborah Borfitz, Clinical Informatics News, May 8, 2018

The One Way the Trump Administration Can Drive Competition Without Regulation; The Health Care Blog, March 12, 2018

A National Health Encounter Surveillance System; The Health Care Blog, February 24, 2018 - also in POLITICO Morning eHealth, February 26, 2018

Death by a Thousand Clicks - How can we make EHRs better?; Boston Society of Neurology & Psychiatry, February 22, 2018 - Video 2:02:48 - Note, my presentation starts at the 29 minute mark.

Medicine Is a Profession That is Rapidly Losing Control of Its Tools; The Health Care Blog, February 5, 2018 - also in POLITICO Morning eHealth, February 6, 2018

A Patient Experience-Based View of the TEFCA; The Health Care Blog, January 18, 2018 - also in POLITICO Morning eHealth, January 19, 2018

Examining Open Source Blockchain Developments for Patient Records ; Blockchain in Healthcare Conference; November 16, 2017

Blockchain-linked Patient-Controlled Independent Health Record; Poster, U Michigan ELSI-LHS Symposium; November 15, 2017

HIE of One Highlights; Video (2:25), October 14, 2017

Identity Hubs Capabilities Perspective; Rebooting the Web of Trust V, October 13, 2017

HIE of One Loop: A Patient-Controlled Independent Health Record; Rebooting the Web of Trust V, September 25, 2017

A New Pothole on the Health Interoperability Superhighway; The Health Care Blog, August 15, 2017

ONC Interoperability Meeting Raises More Questions Than Answers; The Health Care Blog, July 25, 2017 - also in POLITICO Morning eHealth, July 26, 2017

Regulatory Capture Tests the New Administration; The Health Care Blog, July 17, 2017

Open Season on Health Privacy in Washington DC; The Health Care Blog, May 24, 2017

Is Health Privacy a Human Right?; The Health Care Blog, May 19, 2017

HIE of One Patient-Centered Health Record Prescription using Blockchains (4:43); YouTube, April 30, 2017

Application of Blockchains to Patient-Centered Health Records; McCombs School of Business Healthcare Initiative April 7, 2017

Privacy Engineering Medical Records; IBM InterConnect2017 Innovation Talk, March 20, 2017

Patient-Owned Medical Records: Can Blockchain Change the Way We Manage our Medical Data? Video and Slides; HTILAB Seminar;  Columbia Mailman School of Public Health, March 9, 2017

Free Independent Health Records; Digital Health @ Harvard, January 26. 2017 Video and Questions Index - Slides

Making the Physician-Patient Relationship Great Again; The Health Care Blog, December 16, 2016

Who controls your medical data? Collaboration with Bruce Schneier, TEDMED November 30, 2016

One Regulation Could Eliminate a Dozen Others; The Health Care Blog, November 29, 2016

Re-Decentralization of Medicine: The HIE of One; The Health Care Blog, October 17, 2016

Blockchains Power the Physician-Patient Relationship; Society for Participatory Medicine, October 10, 2016

Independent Decision Support at the Point of Care with HIE of OneBusiness CaseSlidesMove Health Data Forward Challenge, September 8, 2016

Powering the Physician Patient Relationship with ‘HIE of One’ Blockchain Health ITRebooting the Web of Trust II: ID2020 Design Workshop, September 7, 2016

Powering the Physician Patient Relationship with ‘HIE of One’ Blockchain Health ITONC announces Blockchain challenge winners, August 29, 2016

VA and CMS are Leading From Behind; The Health Care Blog, June 17, 2016

Independent Decision Support at the Point-of-Care for Both Patients and Physicians; The Health Care Blog, May 13, 2016

Model Privacy Notice Comments; reddit; April 15, 2016

Privacy vs. CapitalismSlides and Audio (32:07) advance slides as you listen; MIT, March 31, 2016

Precision Medicine’s First Test is Blue Button on FHIR; The Health Care Blog, March 17, 2016

Congress Needs to do Something About Data Blocking Now; The Health Care Blog, February 28, 2016

Apple and the 3 Kinds of Privacy Policies; The Health Care Blog, February 22, 2016

mdNOSH to pNOSH on FHIR; HEART Presentation, February 8, 2016

Experts argue the benefits, pitfalls of a unique patient identifier; STAT, January 28, 2016

PPR API Task Force Testimony; January 28, 2016

The Patient-Centered Health Record; The Health Care Blog, January 23, 2016

Patient-Centered Health Records - Nosh and HIE of One; (55:45) Google Hangout; January 20, 2016

PPR Comments on the NPRM amendments to the Common Rule; January 6, 2016

Universal Patient Identifiers for the 21st Century; The Health Care Blog; September 1, 2015

Patient-Driven Interoperability; The Health Care Blog; July 20, 2015

Meaningful Use Stage 3 Comment; Regulations.gov; May 29, 2015

(Secret) Apps Invade Healthcarevideo 12:33, (click Gropper...) - slides - Mass Medical Society Symposium, May 7, 2015

Last Chance for Meaningful Use; The Health Care Blog, April 16, 2015

The HIMSS Version of Voter ID Laws; The Health Care Blog, April 10, 2015

What the IoT can learn from the health care industry; O’Reilly Radar; March 19, 2015

Post-MI Implant and Rehab Use Case; OpenID HEART Workgroup; March 9, 2015

Privacy Engineering Provenance; Data Provenance Task Force Testimony; January 16, 2015

ONC Signals a Shift From Documents to Interfaces; The Health Care Blog, December 7, 2014

An Open Letter on the NATE Trust Community; The Health Care Blog, November 14, 2014

Ebola Offers a Teachable Moment For Health Information Technology; The Health Care Blog, October 10, 2014

What You Need to Know About Patient Matching and What You Can Do About It; The Health Care Blog, February 21, 2014

Who “owns” healthcare data? Medicine X Stanford Hangout, February 4, 2014

IDESG Is a Glimpse of Our Digital Future; The Health Care Blog, January 26, 2014

Let’s Decriminalize Our Health Records; The Health Care Blog, January 10, 2014

It’s Doctors versus Hospitals Over Meaningful Use; The Health Care Blog, December 12, 2013

Information Asymmetry – The Politics of Health IT Policy; The Health Care Blog, November 9, 2013

Privacy guru knocks patient ID as ploy; Healthcare IT News, October 23, 2013

State Surveillance Endangers the Affordable Care Act: A Case Study; The Health Care Blog, October 18, 2013

A Troubling Strategy at Health IT Week; The Health Care Blog, September 19, 2013

Competing for Patient Trust and Data Privacy in the Age of Big Data; IHT2 Webinar; September 10, 2013

The Federal Health Data Services Hub Hubbub; The Health Care Blog, August 15, 2013

Radiation Exposure Monitoring for Patient Safety; Patient Safety and Quality Healthcare, July / August 2013

Enabling the Health Care Locavore; The Health Care Blog, August 11, 2013

The Affordable Care Act Will Fail Without Patient Engagement, The Health Care Blog, July 22, 2013

Datapalooza Report on Data Economics and a Call for Reciprocity; The Health Care Blog, June 5, 2013

The Independent Purchase Decision Support Test; The Health Care Blog, May 28, 2013

Debate: Two views on the path to data access; Video, Health:Refactored, May 14, 2013

Open Data Advocate Joins Patient Privacy Rights Group as Chief Technology Officer; The Health Care Blog, May 7 2013

ONC Holds A Key To the Structural Deficit; The Health Care Blog, April 7, 2013

The #CommonWell Open Discussion Forum; The Health Care Blog, March 18, 2013

CommonWell Is a Shame and a Missed Opportunity; The Health Care Blog, March 6, 2013

Patient Privacy Rights testimony on patient ID and Direct messaging; HHS Hearing January 29, 2013

John Halamka demos image sharing via Direct; 2:55 MP3, HHS Hearing January 29, 2013

Your health data could be worth over $3,000 / year; Healthcare Savvy, October 21, 2012

The Coming Health Care Singularity; The Health Care Blog, September 17, 2012

What Do Aggregators Know About Me and Why It’s Important; e-patients.net, May 20, 2012

A Fork in the Road to Meaningful Use; The Health Care Blog, May 4, 2012

Health Information Exchanges and the Problem of Consent; KevinMD, March 26, 2012

Engaging “The” Patient; The Health Care Blog, March 13, 2012

An e-Patient Perspective on Stage 2 of Meaningful Use;  e-patients.net, February 27, 2012

Looking for Interoperability in all the Wrong Places; The Health Care Blog, November 7, 2011 or here

Open-Source Health Care Software; Virtual Mentor - American Medical Association Journal of Ethics, September 2011, Volume 13, Number 9: 632-636.

The Case for Connected Web Portals; HealthURL, September 10, 2011

How to post the specific costs and services? Healthcare Savvy, August 21, 2011

Are Patients and Interoperability Finally Coming to the Fore of Health IT? The Health Care Blog, March 17, 2011

Putting the Patient First, Literally; The Health Care Blog, January 18, 2011

Wanted: A PCAST Patient Portal; The Health Care Blog, January 4, 2011

PCAST – Is ONC Embracing Health Information Exchange from the Patient Perspective? Care and Cost, December 15, 2010

The Dog’s OAuth; The Health Care Blog, January 18, 2010

Health Internet - The New Consumer-Friendly NHIN; The Health Care Blog, October 9, 2009

Meaningful Health Data Mining - How will we regulate consumer-driven research and advice? The Health Care Blog, May 1, 2009

A Transparent Health Record; The Health Care Blog, January 28, 2009

Private Health Records and the Health URL - A patient-centered care team approach to health information management; Patient Safety and Quality Healthcare, July / August 2007

Web-Connected Patients and Doctors: The Case for Personal Control of Private Health Information; Patient Safety and Quality Healthcare, July / August 2006

RealTime Worklist(TM) Physician-Centric Systems Integration for an On-Demand World; mTHINK, June 30, 2003

The Internet as a Disruptive Technology; Imaging Economics, December 2001

The Internet Vision of PACS; C. Kelty Thesis Appendix, May 26, 1999

Enterprise-scale image distribution with a Web PACS; Journal of Digital Imaging, August 1998