HealthURL

 

Postings and Publications

  1. Privacy Entrepreneur Adrian Gropper; by Daniel Dern; IEEE Spectrum; April 2021

  2. Trust in Health Care; TWiT - This Week in Tech with Doc Searls and Shawn Powers; Video 59:38; November 18, 2020

  3. SSI 4 Pandemics; MyData; October 7, 2020

  4. UMA Health Info Interop + User Control Webinar; Kantara Webinar, July 21, 2020

  5. How Traditional Health Records Bolster Structural Racism; Bill of Health, Petrie-Flom Center at Harvard Law, June 23, 2020

  6. ONC Patient Identity and Matching Working Session; HHS Video Testimony; 8 minutes; June 1, 2020

  7. Community Organizations Can Reduce the Privacy Impacts of Surveillance During COVID-19; Bill of Health, Petrie-Flom Center at Harvard Law, April 29, 2020

  8. A Patient’s View of the Cures Regulations; The Health Care Blog, March 11, 2020

  9. Strategic Interests and the ONC Annual Meeting; The Health Care Blog, January 29, 2020

  10. Patient-Directed Uses vs. The Platform; The Health Care Blog, December 18, 2019

  11. What Google Isn’t Saying About Your Health Records; Bill of Health, Petrie-Flom Center at Harvard Law, November 14, 2019

  12. A Protocol for Decentralized Authorization; W3C Credentials Community Group, November 12, 2019

  13. Trustee Universal Health Records - White Paper; November 2019

  14. ACCESS Act Points the Way to a Post-HIPAA World; Bill of Health, Petrie-Flom Center at Harvard Law, October 24, 2019

  15. The case for self-sovereign personal AI; Carnegie Mellon University HCII Seminar Series, September 13, 2019

  16. Barbarians at the Gate; The Health Care Blog, September 5, 2019

  17. Patient Privacy Rights Information Governance Label; Posted to SSRN August 28, 2019

  18. US Patent for: MANAGED OPEN SOURCE MEDICAL DEVICES 10,367,803, July 30, 2019

  19. A National Patient Identifier: Should You Care? Bill of Health, Petrie-Flom Center at Harvard Law, July 3, 2019 also THCB

  20. Human Agency has a Standard; June 19, 2019

  21. QHIN Technical Framework PPR Comment; to ONC, June 16, 2019

  22. Patient Privacy Rights Comments to TEFCA Draft 2; to ONC, June 16, 2019

  23. Patient Privacy Rights Comment on Regulatory Capture; to ONC and CMS NPRM, June 16, 2019

  24. Patient Privacy Rights Comments on the Proposed ONC Regulation Pursuant to the Cures Act; Regulations.gov, May 31, 2019

  25. Remembering the Real Stakeholders: Patient Privacy Rights Comments on the Proposed CMS Regulation Pursuant to the Cures Act; Bill of Health, Petrie-Flom Center at Harvard Law, May 32, 2019

  26. Patient-Directed Access for Competition to Bend the Cost Curve; The Health Care Blog, April 18, 2019

  27. How SSI Will Survive Capitalism; Rebooting Web of Trust VIII; April 15, 2019

  28. Draft rules on health information: a ‘Reformation’ in the making?; STAT, April 12, 2019

  29. ONC’s Proposed Rule is a Breakthrough in Patient Empowerment; Bill of Health, Petrie-Flom Center at Harvard Law, February 19, 2019 - Also, THCB, Feb 22, 2019

  30. HIPAA RFI Comments: Patient Privacy Rights; Bill of Health, Petrie-Flom Center at Harvard Law, February 7, 2019 - Also, THCB, Feb 7, 2019

  31. The Futility of Patient Matching; The Health Care Blog, October 25, 2018

  32. Standards for Personal Agency - The Homeless Health Record Project; (13:30) U.S. Department of Health and Human Services (HHS) “Data Min(d)ing: Privacy and Our Digital Identities,” Symposium, October 22, 2018

  33. Privacy Regulation in the Age of Machine Learning; Bill of Health, Petrie-Flom Center at Harvard Law, October 17, 2018

  34. Standards for Agency and Decentralized Information Governance - Early Experience; Rebooting Web of Trust 7; September 2018

  35. An inside look at the potential of blockchain in healthcare; TechTarget, September 2018

  36. Adrian Gropper and the HIE of One – Harlow on Healthcare; Podcast 28:35, August 6, 2018

  37. Information Blocking–The AHA Comments & PPR Responds; and linked Gdoc, The Health Care Blog, July 20, 2018

  38. Reimagining Health Data Exchange: An Application Programming Interface–Enabled Roadmap for India; J Med Internet Res 2018;20(7):e10725 DOI: 10.2196/10725 - See also Ref 89: Government of India, NITI Aayog. National Health Stack: Strategy and Approach. 2018 Jul. (p30 mentions “health information exchange of one”)

  39. MyData Podacast - Adrian Gropper; MyData interview by Molly Scwartz, Video (49:25) July 4, 2018

  40. PPR Comments on Information Blocking; Formal CMS Comment also in The Health Care Blog, June 25, 2018

  41. The Information Technology Challenge to Medicine as a Profession; Talk at the 40th reunion for Harvard Medical School; June 1, 2018

  42. Empowering Patients through Decentralized Information Governance; The Health Care Blog, March 12, 2018

  43. Blockchain-Secured, Patient-Controlled Health Records; By Deborah Borfitz, Clinical Informatics News, May 8, 2018

  44. The One Way the Trump Administration Can Drive Competition Without Regulation; The Health Care Blog, March 12, 2018

  45. A National Health Encounter Surveillance System; The Health Care Blog, February 24, 2018 - also in POLITICO Morning eHealth, February 26, 2018

  46. Death by a Thousand Clicks - How can we make EHRs better?; Boston Society of Neurology & Psychiatry, February 22, 2018 - Video 2:02:48 - Note, my presentation starts at the 29 minute mark.

  47. Medicine Is a Profession That is Rapidly Losing Control of Its Tools; The Health Care Blog, February 5, 2018 - also in POLITICO Morning eHealth, February 6, 2018

  48. A Patient Experience-Based View of the TEFCA; The Health Care Blog, January 18, 2018 - also in POLITICO Morning eHealth, January 19, 2018

  49. Examining Open Source Blockchain Developments for Patient Records ; Blockchain in Healthcare Conference; November 16, 2017

  50. Blockchain-linked Patient-Controlled Independent Health Record; Poster, U Michigan ELSI-LHS Symposium; November 15, 2017

  51. HIE of One Highlights; Video (2:25), October 14, 2017

  52. Identity Hubs Capabilities Perspective; Rebooting the Web of Trust V, October 13, 2017

  53. HIE of One Loop: A Patient-Controlled Independent Health Record; Rebooting the Web of Trust V, September 25, 2017

  54. A New Pothole on the Health Interoperability Superhighway; The Health Care Blog, August 15, 2017

  55. ONC Interoperability Meeting Raises More Questions Than Answers; The Health Care Blog, July 25, 2017 - also in POLITICO Morning eHealth, July 26, 2017

  56. Regulatory Capture Tests the New Administration; The Health Care Blog, July 17, 2017

  57. Open Season on Health Privacy in Washington DC; The Health Care Blog, May 24, 2017

  58. Is Health Privacy a Human Right?; The Health Care Blog, May 19, 2017

  59. HIE of One Patient-Centered Health Record Prescription using Blockchains (4:43); YouTube, April 30, 2017

  60. Application of Blockchains to Patient-Centered Health Records; McCombs School of Business Healthcare Initiative April 7, 2017

  61. Privacy Engineering Medical Records; IBM InterConnect2017 Innovation Talk, March 20, 2017

  62. Patient-Owned Medical Records: Can Blockchain Change the Way We Manage our Medical Data? Video and Slides; HTILAB Seminar;  Columbia Mailman School of Public Health, March 9, 2017

  63. Free Independent Health Records; Digital Health @ Harvard, January 26. 2017 Video and Questions Index - Slides

  64. Making the Physician-Patient Relationship Great Again; The Health Care Blog, December 16, 2016

  65. Who controls your medical data? Collaboration with Bruce Schneier, TEDMED November 30, 2016

  66. One Regulation Could Eliminate a Dozen Others; The Health Care Blog, November 29, 2016

  67. Re-Decentralization of Medicine: The HIE of One; The Health Care Blog, October 17, 2016

  68. Blockchains Power the Physician-Patient Relationship; Society for Participatory Medicine, October 10, 2016

  69. Independent Decision Support at the Point of Care with HIE of One; Business Case; Slides; Move Health Data Forward Challenge, September 8, 2016

  70. Powering the Physician Patient Relationship with ‘HIE of One’ Blockchain Health IT; Rebooting the Web of Trust II: ID2020 Design Workshop, September 7, 2016

  71. Powering the Physician Patient Relationship with ‘HIE of One’ Blockchain Health IT; ONC announces Blockchain challenge winners, August 29, 2016

  72. VA and CMS are Leading From Behind; The Health Care Blog, June 17, 2016

  73. Independent Decision Support at the Point-of-Care for Both Patients and Physicians; The Health Care Blog, May 13, 2016

  74. Model Privacy Notice Comments; reddit; April 15, 2016

  75. Privacy vs. Capitalism; Slides and Audio (32:07) advance slides as you listen; MIT, March 31, 2016

  76. Precision Medicine’s First Test is Blue Button on FHIR; The Health Care Blog, March 17, 2016

  77. Congress Needs to do Something About Data Blocking Now; The Health Care Blog, February 28, 2016

  78. Apple and the 3 Kinds of Privacy Policies; The Health Care Blog, February 22, 2016

  79. mdNOSH to pNOSH on FHIR; HEART Presentation, February 8, 2016

  80. Experts argue the benefits, pitfalls of a unique patient identifier; STAT, January 28, 2016

  81. PPR API Task Force Testimony; January 28, 2016

  82. The Patient-Centered Health Record; The Health Care Blog, January 23, 2016

  83. Patient-Centered Health Records - Nosh and HIE of One; (55:45) Google Hangout; January 20, 2016

  84. PPR Comments on the NPRM amendments to the Common Rule; January 6, 2016

  85. Universal Patient Identifiers for the 21st Century; The Health Care Blog; September 1, 2015

  86. Patient-Driven Interoperability; The Health Care Blog; July 20, 2015

  87. Meaningful Use Stage 3 Comment; Regulations.gov; May 29, 2015

  88. (Secret) Apps Invade Healthcare; video 12:33, (click Gropper...) - slides - Mass Medical Society Symposium, May 7, 2015

  89. Last Chance for Meaningful Use; The Health Care Blog, April 16, 2015

  90. The HIMSS Version of Voter ID Laws; The Health Care Blog, April 10, 2015

  91. What the IoT can learn from the health care industry; O’Reilly Radar; March 19, 2015

  92. Post-MI Implant and Rehab Use Case; OpenID HEART Workgroup; March 9, 2015

  93. Privacy Engineering Provenance; Data Provenance Task Force Testimony; January 16, 2015

  94. ONC Signals a Shift From Documents to Interfaces; The Health Care Blog, December 7, 2014

  95. An Open Letter on the NATE Trust Community; The Health Care Blog, November 14, 2014

  96. Ebola Offers a Teachable Moment For Health Information Technology; The Health Care Blog, October 10, 2014

  97. What You Need to Know About Patient Matching and What You Can Do About It; The Health Care Blog, February 21, 2014

  98. Who “owns” healthcare data? Medicine X Stanford Hangout, February 4, 2014

  99. IDESG Is a Glimpse of Our Digital Future; The Health Care Blog, January 26, 2014

  100. Let’s Decriminalize Our Health Records; The Health Care Blog, January 10, 2014

  101. It’s Doctors versus Hospitals Over Meaningful Use; The Health Care Blog, December 12, 2013

  102. Information Asymmetry – The Politics of Health IT Policy; The Health Care Blog, November 9, 2013

  103. Privacy guru knocks patient ID as ploy; Healthcare IT News, October 23, 2013

  104. State Surveillance Endangers the Affordable Care Act: A Case Study; The Health Care Blog, October 18, 2013

  105. A Troubling Strategy at Health IT Week; The Health Care Blog, September 19, 2013

  106. Competing for Patient Trust and Data Privacy in the Age of Big Data; IHT2 Webinar; September 10, 2013

  107. The Federal Health Data Services Hub Hubbub; The Health Care Blog, August 15, 2013

  108. Radiation Exposure Monitoring for Patient Safety; Patient Safety and Quality Healthcare, July / August 2013

  109. Enabling the Health Care Locavore; The Health Care Blog, August 11, 2013

  110. The Affordable Care Act Will Fail Without Patient Engagement, The Health Care Blog, July 22, 2013

  111. Datapalooza Report on Data Economics and a Call for Reciprocity; The Health Care Blog, June 5, 2013

  112. The Independent Purchase Decision Support Test; The Health Care Blog, May 28, 2013

  113. Debate: Two views on the path to data access; Video, Health:Refactored, May 14, 2013

  114. Open Data Advocate Joins Patient Privacy Rights Group as Chief Technology Officer; The Health Care Blog, May 7 2013

  115. ONC Holds A Key To the Structural Deficit; The Health Care Blog, April 7, 2013

  116. The #CommonWell Open Discussion Forum; The Health Care Blog, March 18, 2013

  117. CommonWell Is a Shame and a Missed Opportunity; The Health Care Blog, March 6, 2013

  118. Patient Privacy Rights testimony on patient ID and Direct messaging; HHS Hearing January 29, 2013

  119. John Halamka demos image sharing via Direct; 2:55 MP3, HHS Hearing January 29, 2013 Your health data could be worth over $3,000 / year; Healthcare Savvy, October 21, 2012

  120. The Coming Health Care Singularity; The Health Care Blog, September 17, 2012

  121. What Do Aggregators Know About Me and Why It’s Important; e-patients.net, May 20, 2012

  122. A Fork in the Road to Meaningful Use; The Health Care Blog, May 4, 2012

  123. Health Information Exchanges and the Problem of Consent; KevinMD, March 26, 2012

  124. Engaging “The” Patient; The Health Care Blog, March 13, 2012

  125. An e-Patient Perspective on Stage 2 of Meaningful Use;  e-patients.net, February 27, 2012

  126. Looking for Interoperability in all the Wrong Places; The Health Care Blog, November 7, 2011 or here

  127. Open-Source Health Care Software; Virtual Mentor - American Medical Association Journal of Ethics, September 2011, Volume 13, Number 9: 632-636.

  128. The Case for Connected Web Portals; HealthURL, September 10, 2011

  129. How to post the specific costs and services? Healthcare Savvy, August 21, 2011

  130. Are Patients and Interoperability Finally Coming to the Fore of Health IT? The Health Care Blog, March 17, 2011

  131. Putting the Patient First, Literally; The Health Care Blog, January 18, 2011

  132. Wanted: A PCAST Patient Portal; The Health Care Blog, January 4, 2011

  133. PCAST – Is ONC Embracing Health Information Exchange from the Patient Perspective? Care and Cost, December 15, 2010

  134. The Dog’s OAuth; The Health Care Blog, January 18, 2010

  135. Health Internet - The New Consumer-Friendly NHIN; The Health Care Blog, October 9, 2009

  136. Meaningful Health Data Mining - How will we regulate consumer-driven research and advice? The Health Care Blog, May 1, 2009

  137. A Transparent Health Record; The Health Care Blog, January 28, 2009

  138. Private Health Records and the Health URL - A patient-centered care team approach to health information management; Patient Safety and Quality Healthcare, July / August 2007

  139. Web-Connected Patients and Doctors: The Case for Personal Control of Private Health Information; Patient Safety and Quality Healthcare, July / August 2006

  140. RealTime Worklist(TM) Physician-Centric Systems Integration for an On-Demand World; mTHINK, June 30, 2003

  141. The Internet as a Disruptive Technology; Imaging Economics, December 2001

  142. The Internet Vision of PACS; C. Kelty Thesis Appendix, May 26, 1999

  143. Enterprise-scale image distribution with a Web PACS; Journal of Digital Imaging, August 1998